#lymedisease
591.9M views
I’ll never forget that doctor telling me she could lose her license if we even spoke about it…
How am I supposed to receive adequate medical care when we can’t even acknowledge the root cause?
Have you ever had an experience like this?
#lymedisease #chronicillness #chronicallyill #autoimmunedisease #chronicpain #chronicallychill #narcolepsy #fibromyalgia #epsteinbarrvirus #mono #sicktok #pots #dysautonomia #cfs #medical #awareness #healthcare #healthcareworker #spoonie #medicalhumor #medicaltrauma #humor #ehlersdanlos #hypermobility #lyme #florida #nc #duke #mold #toxicity
Beyond thankful & privileged to have parents that wouldn’t accept “It’s just Mono” for an answer and found a Lyme-literate doctor. 💖🫶✨
Please don’t give up. My DM’s are always open.
How am I supposed to receive adequate medical care when we can’t even acknowledge the root cause?
Have you ever had an experience like this?
#lymedisease #chronicillness #chronicallyill #autoimmunedisease #chronicpain #chronicallychill #narcolepsy #fibromyalgia #epsteinbarrvirus #mono #sicktok #pots #dysautonomia #cfs #medical #awareness #healthcare #healthcareworker #spoonie #medicalhumor #medicaltrauma #humor #ehlersdanlos #hypermobility #lyme #florida #nc #duke #mold #toxicity
Beyond thankful & privileged to have parents that wouldn’t accept “It’s just Mono” for an answer and found a Lyme-literate doctor. 💖🫶✨
Please don’t give up. My DM’s are always open.
11th August ‘23. *my mum videos these for myself and my doctors, and for education on my rarely known condition, please be mindful of your comments*🤎a bit nervous to share all this but this is what one of my PANDAS/BGE episodes can look like from start to finish. as you can tell from the laughter, this isnt new to us. not all are like this, some im just sobbing for hours in pain. those ones wouldnt be shared. for educational & awareness purposes only🤎🧠 #pandaspans #braininflammation #encephalitis #bartonella #babesia #advocate #awareness #pandaspanswarrior #lymedisease #seizure #catatonia #dystonia #tonicclonicseizures
