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rarepatientvoice

RarePatientVoice

1225Following
5547Followers
24.7KLikes

Paid surveys, interviews and more!

linktr.ee/rarepatientvoice
⭐️WEEKLY WARRIOR⭐️ @twainandabel Today we would like to introduce all of you to Carlie and her sweet boy, Arlo! Carlie,we appreciate you taking the time to tell a bit of you and Arlo’s story! You can follow along with these two @twainandabel! Here you will find all things wholesome family while advocating, parenting, farming, pottery making, and more! I forgot to mention her amazing cinnamon rolls make many appearances and that’s always something we need to see! ⭐️Community, please give Carlie and and Arlo a warm welcome. Thank you, Carlie, for being part of the Rare Patient Voice community! . . #downsyndrome #fyp #downsyndromeawareness #advocate created by RarePatientVoice with RarePatientVoice's original sound
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⭐️WEEKLY WARRIOR⭐️ @twainandabel Today we would like to introduce all of you to Carlie and her sweet boy, Arlo! Carlie,we appreciate you taking the time to tell a bit of you and Arlo’s story! You can follow along with these two @twainandabel! Here you will find all things wholesome family while advocating, parenting, farming, pottery making, and more! I forgot to mention her amazing cinnamon rolls make many appearances and that’s always something we need to see!
⭐️Community, please give Carlie and and Arlo a warm welcome. Thank you, Carlie, for being part of the Rare Patient Voice community!
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#downsyndrome #fyp #downsyndromeawareness #advocate
PARTNER SHOUT OUT! Meet Nick of Side Hustle Nation! Nick, we appreciate you and your communities support! You can check Nick out at his Youtube channel or on his podcast! Thanks for all you do Nick!
#sidehustle #fyp
This is a whole topic that needs to be talked about more. #fyp #health #wellness #diagnosis
⭐️Weekly Warrior⭐️ Community, meet Emily! @emilyelsiee , we are so grateful to have you share your story! Thank you for being part of our community. Shines a little brighter knowing you here with all of us! Community, let’s give Emily a warm welcome!!!
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#shortbowelsyndrome #cat #catmum #cardiacarrest #chronicillness #shortbowelsyndrome #shortbowel
⭐️Partner Shout Out⭐️ Meet Dominque of #invisiyouth . We appreciate what you are doing for thr teen and young adult chronic illness community. We appreciate your partnership and we are proud to be working along side of you! Be sure to join her #showmystarchallenge
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#chronicillness #disabled #mentalhealth #invisibleillness
Are you currently a member? We have over 100,000 patients and caregivers who participate and we have over 4,000 referral partners.
➡️Todays the day!
➡️Be the catalyst for change.
➡️Earn from the comfort of your home
➡️Must be professionally diagnosed.
#fyp #avocado #health #wellness
❗️Weekly Warrior❗️Community, meet Connie. Connie, we appreciate you advocating for yourself and for those around you. Thank you for sharing a bit of your story. We are more than happy to have you in oir community! Please gove Connie a warm welcome!
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#fyp #rarepatientvoice
🤜🏽Partner Shout Out🤛🏽 @Claire Bowman - ADH-She ✨🖤 Community, meet Claire, Claire, thank you for soreading awareness atound ADHD. Your relatable, influential content is what many of is need on a daily basis. We apprciate you and thank you for your support. Community, say hi to Claire!
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#adhd #adhdinwomen #adhdawareness #adhdtiktok #adhdadvocate #fyp
We have all overcome so many of our fears, Doctor visits, treatment, surgery, the dreaded phone call, it all creates a fear in us. One day we are able to put those fears behind us and take whatever control we have within reach and quietly (or loudly) move forward. We can then lead the way for others who are still fearful. I am thankful to be part of this community. #fyp #moana
➡️Partner Shout Out⬅️ Meet Ellen,@Garden to table with Ellen 🌱 ! While living with multiple chronic illnesses, Ellen finds joy in gardening, cooking, baking, and photography. Her platform has recipes for all things scrumptious and nature. Be sure to hop over to her page, introduce yourself and connect. If tou are interested in partnering with RPV message us! #fyp #newzealand #chronicillness
If you are professionally diagnosed with a condition or are a caregiver to a loved one, yoh acn participate in medical research.
Here are a few more studies we are looking to fill immediately:
Hepatitis D👉🏽Parkinson’s Disease👉🏽Cervical Cancer👉🏽Myasthenia Gravis👉🏽 Giant Cell Arthritis 👉🏽Turners Syndrome 👉🏽Amyloidosis👉🏽Eczema 👉🏽Obesity👉🏽Growth Hormone Deficiency 👉🏽Lupus Nephritis 👉🏽Kidney Disease👉🏽 Fuch’s Endothelial Corneal Dystrophy 👉🏽Lung Disease 👉🏽Breast Cancer

Would you like to particpate?
👉🏽Weekly Warrior👈🏼 Community meet Dani! Dani, your positive presence in our community keeps us all pushing forward. Thank you for sharing just a peice of your journey! We appreciate you!
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#fyp #newzeland
🩺Partner Shout Out🩺

@Kidney Nurse 👨🏾‍⚕️Expert We want everyone to know we are so appreciative of your support! Community, meet Steve!! “Kidney Disease, if properly handled, doesn’t have to affect your quality of life”-Steve

#nurse #stevethekidneynurse #kidneydisease #ckd #chronickidneydisease #awareness #advocate
🙂Weekly Warrior🙂 We would like to take this opportunity to introduce you all to this week’s Weekly Warrior! Community, meet Hollie! Hollie, we arw very appreciative that tou took the time to share a little bit about yourself! We arw thankful for your advocacy! Let’s all give Hollie a warm welcome into our community.
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#fyp #spinalcordinjury
👉🏽 Partner Shout Out 👈🏼 @K “Better together!” Keyla we appreciate all of your support and all of your advocacy efforts! We sure are glad you are part of our community!

#fyp #Cancer #crohns #ulcerativecolitis
🙂Weekly Warrior🙂 Community, meet Charlotte! Charlotte, it takes great courage and bravery to share one’s story. We are thankful you shared yours. Thank you for your advocacy! Community, please give Charlotte a warm welcome, introduce yourself and give her a follow!
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@FND_in_humans #fyp #fnd #chronicillness
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