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www.myelopathy.org registered charity 1178673 founded to raise awareness of DCM
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Myelopathy.org are delighted to invite you to Yoga for All.
Come and explore the practice of yoga for mind and body
These sessions will be tailored specifically to your needs and open to any ability. They will be chair based and each month we will focus on a different set of movements over 4 weeks - this way, you can hopefully notice if your range of movement or strength is increasing. I've consulted with members of the patient community to ensure that what I deliver will be useful, accessible and hopefully fun! We will start with breathing exercises then some physical postures on the chair, ending with a short relaxation and meditation. Each session will be around 15-20 minutes long.
The sessions will be recorded so if you can't attend the live session you can pick it up when you want to.
Dates and times:
7th June 11.30am BST.
14th June 5.30pm BST.
21st June 11.30am BST.
28th June 5.30pm BST.
Join Myelopathy.org Support Group for more info 🔗Link in Bio🔗🧘🏻♂️🧘♀️
#yoga #seatedyoga #MyelopathyOrg
#MyelopathyMatters
#MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
#DegenerativeCervicalMyelopathy
#DCM
Come and explore the practice of yoga for mind and body
These sessions will be tailored specifically to your needs and open to any ability. They will be chair based and each month we will focus on a different set of movements over 4 weeks - this way, you can hopefully notice if your range of movement or strength is increasing. I've consulted with members of the patient community to ensure that what I deliver will be useful, accessible and hopefully fun! We will start with breathing exercises then some physical postures on the chair, ending with a short relaxation and meditation. Each session will be around 15-20 minutes long.
The sessions will be recorded so if you can't attend the live session you can pick it up when you want to.
Dates and times:
7th June 11.30am BST.
14th June 5.30pm BST.
21st June 11.30am BST.
28th June 5.30pm BST.
Join Myelopathy.org Support Group for more info 🔗Link in Bio🔗🧘🏻♂️🧘♀️
#yoga #seatedyoga #MyelopathyOrg
#MyelopathyMatters
#MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
#DegenerativeCervicalMyelopathy
#DCM
Iwan Sadler Co Founder of Myelopathy.org describing his struggle for a diagnosis and stressing the importance of early recognition of DCM to all those who treat spine patients. “For individuals with DCM, the challenges they face are not only physical but also psychological, and they require comprehensive support that addresses both aspects. It is essential to acknowledge and tackle the mental and physical hurdles that DCM patients encounter and make it part of the fundamental care that they deserve
#MyelopathyOrg
#MyelopathyMatters
#MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
#DegenerativeCervicalMyelopathy
#DCM
#MyelopathyOrg
#MyelopathyMatters
#MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
#DegenerativeCervicalMyelopathy
#DCM
Creating practice guidelines for myelopathy, with Chad Cook and RECODE-DCM
At present, treatment for myelopathy varies widely. Although various surgical treatments are well known, there are currently no guidelines for the many non-operative domains of care (e.g. pre- and post-operative rehabilitation, pain relief, physiotherapy, nursing). In a powerful initiative led by Prof Chad Cook from Duke University, the RECODE-DCM Perioperative Rehabilitation Incubator is bringing together experts from all relevant disciplines to write management guidelines. Iwan shares his story, as a reminder of why filling this important knowledge gap could provide many simple, immediate gains for people living with myelopathy.
🔗Link in Bio🔗 #MyelopathyPodcast #MyelopathyMattersPodcast
#AOspine
#RecodeDCM
#MyelopathyOrg
#MyelopathyMatters
#MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
#DegenerativeCervicalMyelopathy
#DCM
At present, treatment for myelopathy varies widely. Although various surgical treatments are well known, there are currently no guidelines for the many non-operative domains of care (e.g. pre- and post-operative rehabilitation, pain relief, physiotherapy, nursing). In a powerful initiative led by Prof Chad Cook from Duke University, the RECODE-DCM Perioperative Rehabilitation Incubator is bringing together experts from all relevant disciplines to write management guidelines. Iwan shares his story, as a reminder of why filling this important knowledge gap could provide many simple, immediate gains for people living with myelopathy.
🔗Link in Bio🔗 #MyelopathyPodcast #MyelopathyMattersPodcast
#AOspine
#RecodeDCM
#MyelopathyOrg
#MyelopathyMatters
#MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
#DegenerativeCervicalMyelopathy
#DCM
We’ve Updated Our Website!
We are excited to announce the launch of our newly updated website! Our team has been hard at work over the past few months, working to bring you a more visually appealing and user-friendly experience. We especially want to thank our trustee Carol Sun-Schuster for leading this project and working together with our volunteers Heather Bidwell and Josef Hejcman in making this happen.
🔗Link in Bio 🔗
#website
#Blog
#MyelopathyBlog
#MyelopathyMatter #MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
#DegenerativeCervicalMyelopathy
#DCM
We are excited to announce the launch of our newly updated website! Our team has been hard at work over the past few months, working to bring you a more visually appealing and user-friendly experience. We especially want to thank our trustee Carol Sun-Schuster for leading this project and working together with our volunteers Heather Bidwell and Josef Hejcman in making this happen.
🔗Link in Bio 🔗
#website
#Blog
#MyelopathyBlog
#MyelopathyMatter #MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
#DegenerativeCervicalMyelopathy
#DCM
BritSpine 2023: Making Myelopathy.org Memorable to Spine Care Professionals
The future for Degenerative Cervical Myelopathy (DCM) looked bright in the Glasgow sunshine at BritSpine 2023! This international conference, held at the Scottish Event Campus from April 18-20, attracted over 600 delegates across the spine care profession.
🔗Link in Bio🔗
#BritSpine2023
#Blog
#MyelopathyBlog
#MyelopathyMatter #MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
#DegenerativeCervicalMyelopathy
#DCM
The future for Degenerative Cervical Myelopathy (DCM) looked bright in the Glasgow sunshine at BritSpine 2023! This international conference, held at the Scottish Event Campus from April 18-20, attracted over 600 delegates across the spine care profession.
🔗Link in Bio🔗
#BritSpine2023
#Blog
#MyelopathyBlog
#MyelopathyMatter #MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
#DegenerativeCervicalMyelopathy
#DCM
A big thank you to BritSpine2023 for having us and for choosing Myelopathy.org as this year's chosen charity and a heartfelt thank you to everyone who has donated these wonderful prizes #BritSpine2023
#MyelopathyBlog
#MyelopathyMatter #MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
#DegenerativeCervicalMyelopathy
#DCM
#MyelopathyBlog
#MyelopathyMatter #MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
#DegenerativeCervicalMyelopathy
#DCM
S4E2 - Forming diagnostic criteria for myelopathy, with Lindsay Tetreault and RECODE-DCM
In this episode, we hear from neurologist Lindsay Tetreault from NYU. Lindsay has been leading the work of the RECODE-DCM Diagnostic Criteria incubator, tackling the all-important question of how to provide a timely, accurate and reliable diagnosis of DCM. Voicing the concerns of individuals living with DCM, Iwan reflects on the profound importance of shortening the time to diagnosis; and Ben explains why the combined perspectives of the multidisciplinary RECODE-DCM network are key to unlocking this research priority.
🔗Link in Bio🔗
#myelopathypodcast #podcast #myelopathyawareness #myelopathysupport #cervicalmyelopathy #myelopathymatters #myelopathyresearch
#myelopathycharity
#makingmyelopathymatter
In this episode, we hear from neurologist Lindsay Tetreault from NYU. Lindsay has been leading the work of the RECODE-DCM Diagnostic Criteria incubator, tackling the all-important question of how to provide a timely, accurate and reliable diagnosis of DCM. Voicing the concerns of individuals living with DCM, Iwan reflects on the profound importance of shortening the time to diagnosis; and Ben explains why the combined perspectives of the multidisciplinary RECODE-DCM network are key to unlocking this research priority.
🔗Link in Bio🔗
#myelopathypodcast #podcast #myelopathyawareness #myelopathysupport #cervicalmyelopathy #myelopathymatters #myelopathyresearch
#myelopathycharity
#makingmyelopathymatter
Are you a person with DC? Or are you a caregiver? Well we've got the right support group for you
Myelopathy.org Support:
https://www.facebook.com/groups/myelopathy.support/?ref=share_group_link
Myelopathy.org Caregiver support :
https://www.facebook.com/groups/1957797261233684/?ref=share_group_link
Come and join the conversation
#MyelopathyOrg
#MyelopathyMatters
#MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
#DegenerativeCervicalMyelopathy
#DCM
Myelopathy.org Support:
https://www.facebook.com/groups/myelopathy.support/?ref=share_group_link
Myelopathy.org Caregiver support :
https://www.facebook.com/groups/1957797261233684/?ref=share_group_link
Come and join the conversation
#MyelopathyOrg
#MyelopathyMatters
#MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
#DegenerativeCervicalMyelopathy
#DCM
Coffee with Esther
(February 2023)
The Joys of Owning a Pet
This month I was only able to do two out of the three virtual coffee breaks due to my little furballs feeling poorly.
🔗Link in Bio🔗
#MyelopathyBlog #MyelopathyMatters
#MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
#DegenerativeCervicalMyelopathy
#dcm
(February 2023)
The Joys of Owning a Pet
This month I was only able to do two out of the three virtual coffee breaks due to my little furballs feeling poorly.
🔗Link in Bio🔗
#MyelopathyBlog #MyelopathyMatters
#MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
#DegenerativeCervicalMyelopathy
#dcm
Tackling the onset of myelopathy, with Aria Nouri and RECODE DCM
Myelopathy Matters is back; into its four year.
Ben is joined by Liz Roberts, Myelopathy.org's programme manager for RECODE DCM.
RECODE DCM is the charity's new myelopathy
"think tank, creating an international and multidisciplinary ecosystem, working alongside those living with myelopathy, to accelerate new discoveries and ensure the enter the clinic. We hear from Aria Nouri, Surgeon Scientist from Geneva and chair of a RECODE DCM international working group looking at the onset of DCM (the Natural History) and what that means for quality care today.
🔗Link in Bio🔗
#myelopathypodcast #podcast #myelopathyawareness #myelopathysupport #cervicalmyelopathy #myelopathymatters #myelopathyresearch
#myelopathycharity
#makingmyelopathymatter
Myelopathy Matters is back; into its four year.
Ben is joined by Liz Roberts, Myelopathy.org's programme manager for RECODE DCM.
RECODE DCM is the charity's new myelopathy
"think tank, creating an international and multidisciplinary ecosystem, working alongside those living with myelopathy, to accelerate new discoveries and ensure the enter the clinic. We hear from Aria Nouri, Surgeon Scientist from Geneva and chair of a RECODE DCM international working group looking at the onset of DCM (the Natural History) and what that means for quality care today.
🔗Link in Bio🔗
#myelopathypodcast #podcast #myelopathyawareness #myelopathysupport #cervicalmyelopathy #myelopathymatters #myelopathyresearch
#myelopathycharity
#makingmyelopathymatter
Coffee with Esther January 2023
By Esther Martin-Moore
New Year, New Me, Living with Myelopathy
Hi All,
Happy New Year to everyone!
I hope you all enjoyed the festive period and your myelopathy didn’t stop you from getting together with family and friends. I wanted to take some time to reflect back on my journey.
🔗Link in Bio🔗
#Blog
#NewYearBlog
#CoffeeWithEsther
#Myelopathy #MyelopathyMatters
#MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
By Esther Martin-Moore
New Year, New Me, Living with Myelopathy
Hi All,
Happy New Year to everyone!
I hope you all enjoyed the festive period and your myelopathy didn’t stop you from getting together with family and friends. I wanted to take some time to reflect back on my journey.
🔗Link in Bio🔗
#Blog
#NewYearBlog
#CoffeeWithEsther
#Myelopathy #MyelopathyMatters
#MyelopathyCharity
#MyelopathyAwareness #Myelopathy #MyelopathySupport #CervicalMyelopathy #MyelopathyResearch
#MakingMyelopathyMatter
