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Muscular Dystrophy Association
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Empowering the people we serve to live longer, more independent lives.
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Today on #LouGehrigDay and everyday, we are grateful for the extraordinary work of Dr. Stanley H. Appel in pioneering #ALS research and care at Houston Methodist Neurological Institute's MDA ALS Research and Clinical Center in Houston. Established in 1982 by Dr. Appel, the center was the first multidisciplinary clinic dedicated to ALS patient care and research in the United States.
Today and throughout June, join us in honoring @MLB ’s recognition of Lou Gehrig Day at games across the country and donate today to help us #EndALS at the link in our bio. #PlayBall #LouGehrigDay #LG4Day #EndALSwithMDA
Today and throughout June, join us in honoring @MLB ’s recognition of Lou Gehrig Day at games across the country and donate today to help us #EndALS at the link in our bio. #PlayBall #LouGehrigDay #LG4Day #EndALSwithMDA
Megan Dejarnett is an author, speaker, disability #DEI educator, and #inclusion advocate. Megan lives with spinal muscular atrophy (#SMA ) and is the organizational founder of No Such Thing Co, a company with a mission to help others redefine purpose by removing defining labels. Author of the children’s books, “No Such Thing as Normal” and “Lovely as Can Be,” Megan teaches children the ways in which everyone is unique and that our differences are what make us special. Listen to her interview with @Mindy Henderson on the #QuestPodcast at the link in our bio.
Jordan Cain lost his father, Joe Cain, to #ALS last November. Joe Cain and his family were recently honored at the MDA Atlanta Night of Hope Gala with the 2023 MDA Steve Ennis Hope Award, which recognizes the family’s dedication to making a difference in the ALS community. Since its beginning, more than $174 million has been invested in ALS research by #MDA – but this disease is underfunded. Join us in our efforts to #EndALS by making a donation today at the link in our bio.
This #EMSWeek , we are so grateful to the International Association of Fire Fighters for funds raised through the #FillTheBoot program. When you fill the boot, you’re making a direct contribution to faster breakthroughs in #ALS research and care. Fill the boot at the link in our bio and help us #EndALS ! #EndALSwithMDA #ALSawareness
As new treatments, cutting-edge research, and a better understanding of genetic sequencing and mutations bring innovative change to the treatment landscape for #neuromusclar disease, understanding your options and accessing care is more important than ever. Dr. Matthew Harms, leading expert in the field of #ALS clinical research and care at @ColumbiaMed and #MDA Medical Advisor discusses what these changes mean to our community as he shares his advice, insights, and expertise on the changing landscape of #neuromuscular care. Tune into the #QuestPodcast at the link in our bio! #ALSawarenessMonth #EndALSwithMDA
This #InternationalFirefightersDay , join #MDA National Spokesperson and @Buffalo Bills running back Nyheim Hines in supporting #MDA and the International Association of Fire Fighters #FilltheBoot fundraiser to support research, care, and advocacy for families living with #musculardystrophy , #ALS , and related #neuromuscular diseases! Help us Fill the Boot today at the link in our bio! #EndALSwithMDA #ALSawarenessMonth
#MDA ’s largest organizational partner, the International Association of Fire Fighters, has helped fund #ALS research and care with #FillTheBoot events for nearly 70 years. IAFF General President, Edward Kelly, said in a message, “Some studies suggest fire fighters are twice as likely to get ALS than the public. It is important to stay educated and support our brothers and sisters and their families impacted by ALS. As fire fighters, we like to fight. Let’s fight for a cure.”
Learn more in the IAFF ALS Initiative at the link in our bio. #EndALSwithMDA #ALSawarenessMonth #FillTheBoot
Learn more in the IAFF ALS Initiative at the link in our bio. #EndALSwithMDA #ALSawarenessMonth #FillTheBoot
We are so grateful to @dutchbroscoffee employees for #volunteering their time and energy to #MDA year-round, from #FillTheBoot and Muscle Walks to Golf and Gala. In 2022 alone, more than 100 Dutch Bros employees donated over 1,000 hours of their time to support MDA at events across the country. Thank you Dutch Bros team for being such great partners all year long! We love you Dutch fam! #WhyIVolunteerForMDA
Former Head Coach of the @uoregonofficial Ducks football team, Mike Bellotti has dedicated decades to helping advance #MDA 's mission through his annual Mike Bellotti's Toast to Strength Gala and Golf Tournament, which is celebrating its 30th year this May. Hear why Mike has devoted the last 30 years to volunteering for MDA, and sign up to volunteer yourself at the link in our bio. #WhyIvolunteerForMDA #NationalVolunteerMonth
Kathia Rivera Fontánez from #PuertoRico has been volunteering for #MDA for 30 years. When Kathia became an MDA #SummerCamp counselor in 1993, she made a promise to a young camper named Angel that she would stay committed to MDA’s mission and continue to bring joy to other kids in the community for as long as she is able to. Join Kathia and sign up to volunteer for MDA today at the link in our bio. #NationalVolunteerMonth #WhyIvolunteerForMDA
SATURDAY 4/22: MDA National Spokesperson & @buffalobills runningback Nyehim Hines is joining the @mdaletsplay #gaming community on 4/22 at 7pm ET to play @playjackboxgames live on Twitch! We’ll be giving away signed jerseys and footballs so be sure to join in on the fun for a chance to win! Join the stream at the link in our bio.
Thinking about volunteering for #MDA #SummerCamp? Longtime volunteer Devin Jensen has some advice: “GO FOR IT. Seriously. You’ll get to work with some amazing people doing work that makes the world a better place. The people who come back to volunteer for MDA year after year are some of the best, most kindhearted people I’ve ever met. The difference you can make is extraordinary.”
Join Devin and sign up to volunteer at MDA Summer camp at the link in our bio! #NationalVolunteerMonth
Join Devin and sign up to volunteer at MDA Summer camp at the link in our bio! #NationalVolunteerMonth
This #NationalVolunteerMonth , we’re proud to launch #WhyIVolunteerWithMDA – our new series spotlighting the incredible volunteers of #MDA who make our mission possible. First up is the Booth family, who have been volunteering at MDA #SummerCamp for over 20 years. Hear their story and follow in their footsteps by signing up to #volunteer today at the link in our bio!
What an incredible day with our collaborators @magicwheelchair with the #reveal of Anna’s #Rapunzel costume. We had a wonderful celebration with our partners at IAFF Local 122 Jacksonville Fire Rescue Station 1. Anna’s brothers were in character from #Tangled supporting their sister who lives with #CharcotMarieTooth disease and is living an empowered life with more dreams to be a scientist!
Huge THANK YOU to all who have supported #MDA #Shamrocks ! Whether you got your Shamrock in-store at one of our amazing participating retailers, or donated online for your virtual shamrocks, your support is helping empower children and adults living with #musculardystrophy , #ALS , and related #neuromuscular diseases. It's never too late to help make a difference - donate online today at the link in our bio!