
haeayouth
HAEA Youth
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Official TikTok account for young people with Hereditary Angioedema (HAE).
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The 2023 HAEA National Summit is taking place in Orlando is July of 2023! This is your chance to meet and make friends with other people with HAE!! Travel grants are available to cover the cost of flights and hotels but you need to register by Feb 28! Pleaaase…if you have HAE, this is an opportunity you will not want to pass up! Visit haea.org to register or email lisa@haea.org for more info!! #hereditaryangioedema #angioedema #hae #youthadvocate #raredisease #haeayouth #haea @maddiefitter
You know we have a podcast right? Over 30 episodes hosted by young people with HAE talking about things that matter to young people with HAE. What’s your fav episode?! Check it out! Link in bio! #youth #advocate #hereditaryangioedema #BeyondHAE #raredisease #chronicillness #foryourpage #podcast #impact
The cool thing about coming to haea events is that you get the opportunity to meet other people who are affected by HAE and build lasting friendships! Also…did you know we have a podcast? Search for #beyondhae on Spotify and iTunes to listen! #hereditaryangioedema #hae #raredisease #angioedema #youthadvocate #fyp