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haeayouth

HAEA Youth

78Following
235Followers
1179Likes

Official TikTok account for young people with Hereditary Angioedema (HAE).

anchor.fm/haeayouth

Videos

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#hereditaryangioedema #angioedema #hae #youthadvocate #raredisease Check out our last video for more info! @maddiefitter created by HAEA Youth with HAEA Youth's original sound
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#hereditaryangioedema #angioedema #hae #youthadvocate #raredisease Check out our last video for more info! @maddiefitter
The 2023 HAEA National Summit is taking place in Orlando is July of 2023! This is your chance to meet and make friends with other people with HAE!! Travel grants are available to cover the cost of flights and hotels but you need to register by Feb 28! Pleaaase…if you have HAE, this is an opportunity you will not want to pass up! Visit haea.org to register or email lisa@haea.org for more info!! #hereditaryangioedema #angioedema #hae #youthadvocate #raredisease #haeayouth #haea @maddiefitter
This is something you definitely do not want to do when you have HAE. On demand medication is always most effective when you treat as early as possible. #dontwait #hereditaryangioedema #angioedema #hae #youthadvocate #raredisease #awareness #medscheck #proactive
It’s a reality for many of us but never listen to anyone who doubts your abilities. You can do anything you set your mind to, even with a rare condition. #hae #hereditaryangioedema #hereditaryangioedmaawareness #youthadvocate #raredisease #awareness #fyp #youthadvocacy
Which little miss or mister do you relate the most to? Tell us in the comments! #rare #raredisease #hereditaryangioedema #hae #angioedema #raiseawareness #youthadvocacy @maddiefitter
Little Miss, Hereditary Angioedema (HAE) edition! Which one do you relate to the most? #rare #raredisease #hereditaryangioedema #hae #raiseawareness #advocacy #youthadvocacy #littlemiss @maddiefitter
Has anyone ever experienced this? #rare #raredisease #hereditaryangioedema #hae #raiseawareness @maddiefitter #advocacy #advocacy
If you have HAE how long did it take you to get diagnosed after you started having symptoms? Thanks to @maddiefitter for making this video! #hereditaryangioedema #hae #haeday #raredisease #raiseawareness #youthadvocacy #makeadifference #fyp
hae day :-) is right around the corner! What does hae day mean to you? #hereditaryangioedema #hae #haeday #raredisease #raiseawareness #youthadvocacy #advocacy @Maddie
You know we have a podcast right? Over 30 episodes hosted by young people with HAE talking about things that matter to young people with HAE. What’s your fav episode?! Check it out! Link in bio! #youth #advocate #hereditaryangioedema #BeyondHAE #raredisease #chronicillness #foryourpage #podcast #impact
The HAEA Youth community lives #BeyondHAE ! What do you do beyondhae? Comment below with your hobbies! #hereditaryangioedema #raredisease #hae #youthadvocate #youthadvocate #chronicillness #rare #angioedema #tiktok #foryourpage #awareness #bettertogetherchallenge
Check out our latest podcast episode all about HAE and dating featuring Kelsie and Matt! Search for #BeyondHAE on Spotify and iTunes! #hereditaryangioedema #raredisease #hae #youthadvocate #chronicillness #foryoupage
The cool thing about coming to haea events is that you get the opportunity to meet other people who are affected by HAE and build lasting friendships! Also…did you know we have a podcast? Search for #beyondhae on Spotify and iTunes to listen! #hereditaryangioedema #hae #raredisease #angioedema #youthadvocate #fyp
Some frequently asked questions about Hereditary Angioedema answered by Gabbi. #fyp #hereditary #angioedema #hereditaryangioedema #rare #raredisease #chronicillness #youthadvocate @grisantigabbi7
a little info from Zanya about where HAE attacks might occur. They can occur in other places on the body but these are a few common locations. #foryoupage #hereditary #hereditaryangioedema #zebra #raredisease #holidaycountdown
Do you’re friends have a hard time understanding your HAE? @maddieandtyler #hereditaryangioedema #hae #raredisease #youthadvocate #beyondhae #myname
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