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chronically_tori_42

Tori

1871Following
3638Followers
100.7KLikes

My Chronic Journey ♠️ Ace Happily Married Artist h-EDS, Von Willebrand's Disease

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My throat hurts more from the intubation than my jaw right now, ha ha. The recovery nurse didn't expect my level of lucidity 😅😅 I'm no fun post op, I kinda wish I was more loopy just for the laughs. EDS ruins everything 😂 . #WisdomTeeth #Surgery #TimeToGoHome #ComplexIllness #MastCellActivationSyndrome #MCAS #EhlersDanlosDyndrome #Gastroparesis #Dysautonomia #POTS #OrthostaticHypotension #VonWillebrandsDisease #CentralLine #TPN created by Tori with Tori's original sound

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My throat hurts more from the intubation than my jaw right now, ha ha. The recovery nurse didn't expect my level of lucidity 😅😅 I'm no fun post op, I kinda wish I was more loopy just for the laughs. EDS ruins everything 😂
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#WisdomTeeth #Surgery #TimeToGoHome #ComplexIllness #MastCellActivationSyndrome #MCAS #EhlersDanlosDyndrome #Gastroparesis #Dysautonomia #POTS #OrthostaticHypotension #VonWillebrandsDisease #CentralLine #TPN

It's always something.... created by Tori with Tori's original sound

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It's always something....

Something always has to go wrong 😬🙃 They aren't taking me back until that med is found and administered, because we need my blood to clot, but still..... created by Tori with Tori's original sound

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Something always has to go wrong 😬🙃
They aren't taking me back until that med is found and administered, because we need my blood to clot, but still.....

my anxiety is at a 10, I cried once already because I was panicking, hopefully the rest goes smoothly. I just want to be done and home ASAP . #ComplexIllness #MastCellActivationSyndrome #MCAS #EhlersDanlosDyndrome #Gastroparesis #Dysautonomia #POTS #OrthostaticHypotension #VonWillebrandsDisease #CentralLine #TPN created by Tori with Kevin MacLeod & Kevin The Monkey's Monkeys Spinning Monkeys

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my anxiety is at a 10, I cried once already because I was panicking, hopefully the rest goes smoothly. I just want to be done and home ASAP
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#ComplexIllness #MastCellActivationSyndrome #MCAS #EhlersDanlosDyndrome #Gastroparesis #Dysautonomia #POTS #OrthostaticHypotension #VonWillebrandsDisease #CentralLine #TPN

MCAS PROBLEMS 😭😭😂😂 . #PersonalAttack #ComplexIllness #MastCellActivationSyndrome #MCAS #EhlersDanlosDyndrome #Gastroparesis #Dysautonomia #POTS #OrthostaticHypotension #VonWillebrandsDisease #CentralLine #TPN created by Tori with Tori's original sound

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MCAS PROBLEMS 😭😭😂😂
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#PersonalAttack #ComplexIllness #MastCellActivationSyndrome #MCAS #EhlersDanlosDyndrome #Gastroparesis #Dysautonomia #POTS #OrthostaticHypotension #VonWillebrandsDisease #CentralLine #TPN

Replying to @checksumerrorThere are legitimate reasons someone may put coke in their tubes, as well as reasons tubies may drink coke orally. Feeding tube patients have a lot of restrictions, but for a lot of us coke is a safe food. 😊 . #ComplexIllness #MastCellActivationSyndrome #MCAS #EhlersDanlosDyndrome #Gastroparesis #FeedingTube #Dysautonomia #POTS #OrthostaticHypotension #VonWillebrandsDisease #CentralLine #TPN created by Tori with nyansuke's 10 minutes! Fashionable and bright jazz piano(1127989)

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Replying to @checksumerror There are legitimate reasons someone may put coke in their tubes, as well as reasons tubies may drink coke orally. Feeding tube patients have a lot of restrictions, but for a lot of us coke is a safe food. 😊
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#ComplexIllness #MastCellActivationSyndrome #MCAS #EhlersDanlosDyndrome #Gastroparesis #FeedingTube #Dysautonomia #POTS #OrthostaticHypotension #VonWillebrandsDisease #CentralLine #TPN

#duet with @Momma Cusses #greenscreen #Stitch #90sKid created by Tori with Momma Cusses's original sound

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#duet with @Momma Cusses #greenscreen #Stitch #90sKid

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